Organizations
Welcome! Here you will find comprehensive information about various organizations and online resources related to Fabrys. We have collected resources that can help you understand and navigate the topic better. Explore our pages to find useful tools and support.
The Center for Rare Diseases at Oslo University Hospital offers specialized healthcare and support to patients with rare diagnoses. The center works to improve the quality of life of patients through interdisciplinary collaboration, research and information. The goal is to strengthen knowledge about rare conditions and contribute to better diagnosis and treatment.
The Fabry Association is the Norwegian association and is an organization that supports and informs people with Fabry disease, a rare genetic disorder. The association works to raise awareness of the disease, offer resources and create a community for those affected and their families.
The Fabry International Network is a global organization dedicated to supporting people affected by Fabry disease. Through outreach, education, and community engagement, the network aims to improve the lives of those affected by this rare disease. The network promotes collaboration between patients, families, and healthcare professionals to increase awareness of the disease and improve treatment.
Sjeldne-sykdommer.no is an information platform that focuses on rare diseases.