Om
This online course is designed for individuals affected by Fabry disease, including patients, family members, healthcare professionals, and policymakers. The course empowers participants with a comprehensive understanding of Fabry disease, its symptoms, and management strategies while promoting awareness and advocacy. Participants will delve into the biology of Fabry, explore the latest research and treatments, and learn effective communication strategies to advocate for themselves and others. Each section consists of engaging multimedia content, interactive elements, and practical exercises tailored to enhance the learning experience. By the end of this course, participants will gain valuable insights into Fabry disease, fostering a supportive community and championing for improved care and research endeavors.
Du kan også bli med i dette programmet via mobilappen. Gå til appen